How to help someone with Crohn’s Disease - Aysha Akif Life Coach
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How to help someone with Crohn’s Disease

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How to help someone with Crohn’s Disease

Tuesday 5th December 2017

Day 3 of Crohn’s and Colitis Awareness Week – #makingtheinvisiblevisible

How to help someone with Crohn’s Disease

Thanks for taking the time to read this post. It’s really important that we talk more openly about Crohn’s Disease and Ulcerative Colitis in order to raise awareness and funds to find a cure which is so desperately needed.

Crohn’s Disease and Ulcerative Colitis are two forms of Inflammatory Bowel Disease affecting over 300,000 people in the UK. They are chronic conditions which mean that they are ongoing and life-long, causing extreme pain, fistulas, fatigue, diarrhoea, anaemia, depression, osteoporosis, severe weight loss, joint pain and mouth ulcers and treatment can include dietary changes, medication and surgery. A lot of people who live with these conditions don’t like to talk openly and may feel embarrassed about it so it’s important that we overcome this embarrassment together and get comfortable talking about Crohn’s and Colitis.

This post shares suggestions of what you can you do to help someone with Inflammatory Bowel Disease whether that is Crohn’s Disease or Ulcerative Colitis.

Firstly, I recommend that you learn more about their condition. The charity, Crohn’s and Colitis UK is a fantastic source of information. Ask questions and listen to what they are telling you and start to think about what they might not be telling you. Understanding what their daily challenges include would be appreciated and it would help to discover what causes them most concern and worry and see how you can help as its the small gestures that really count.

I experience a lot less pain on a daily basis than I did 10 years ago before I went on the intravenous medicine originally known as ‘Infliximab’ now called ‘Remsima / Inflectra’. This drug has certainly changed my life for the better although it doesn’t stop me being concerned about the long term side effects which are currently unknown.  It means a lot to me when someone close to me asks how I am doing.

Secondly, you could donate money to the charity www.crohnsandcolitis.org.uk/donate   or simply talk about the importance of finding a cure for Crohn’s Disease and Ulcerative Colitis to people you know and share relevant links like this video on your social media platforms increasing awareness which is vital! #makingtheinvisiblevisible

Showing an interest in the charity that the person supports particularly during the annual awareness week and sharing important posts to help support the cause is an invaluable way to show them unconditional love and will mean everything to them.

Thirdly, it’s important to understand that these are invisible illnesses and people living with these chronic conditions are not only dealing with the debilitating symptoms as mentioned above, but in many cases, they are having to carefully monitor the side effects of the medication they are taking as well as monitoring their diet which can be exhausting.  The medicines themselves used to ‘treat’ the conditions can cause unfortunate side effects ranging from hair loss, a low immune system making you more susceptible to infection to foetal abnormalities.

So consider what cheers you up or makes you feel better when you are feeling poorly or emotionally exhausted and do that very thing for the person you know. I am aware that I tend to retreat when things are tough. My family are amazing at looking after me when I need them and they will bring round my food shopping for me which I am so grateful for. A previous partner of mine would run me a bath and light some candles which was heavenly. My good friend sometimes pops round for a chat and often brings chocolate to cheer me up. I can promise you that it’s always the smallest gestures that go a very long way to show unconditional love and support.

Please share this post to help raise awareness for Crohn’s and Colitis UK!

Thanks for your support.

Aysha

www.crohnsandcolitis.org.uk

https://fb.me/ayshalivefree

Please click the ‘Synergise with Aysha’ button below to schedule a free 30 minute synergy session with me to discover how we can work together effectively.


Aysha Akif Life Coach